What A Weekend!!!

 Tyler had his B-day. I'm so happy because now he will quit teasing me about being "so" much older than him, I'm only 2 months older and he loves to rub it in. But we had a fun little day. We took the kids to dinner and had fun except for the horrible news we got about my Brother Todd, which i will explain. But I promised Tyler we will be able to celebrate better when we go to San Diego next week. We get to go to the beach and pretend we are in a different reality for awhile, always fun.haha Well my brother 
Todd just had surgery on his knee a few months ago. So he's been havong serious problems with this knee. A lot of pain and they want to give him a new knee but they think he's too young so they were doing stuff to reconstruct hoping they could just hold off on that. Well the other night he went out back to get his dog and it was dark and he just slipped in some mud and his bad leg went out first and all the weight went onto his bad leg and it just transferred the weight to his femur and it snapped in half. Well the real problem is that he has a blood clotting disease that forms blood clots that he has almost died from 3 times already. They ripped through his heart and lungs a few years ago and now he has pulmonary hypertension which just means his heart will only live about 6-7 more years. they can't give him a heart transplant because of his blood clotting disease. They have never been able to figure out where the clots are coming from and he has been on serious blood thinners for about 3-4 years. Well, when his femur snapped his blood was so thin he started to bleed to death internally. When they got to the hospital they wanted to tranfer him to a bigger hospital because of his heart and the fact that his blood was so thin. Well they had to wait for 5-6 hours to operate while trying to get his blood a little thicker, while they waited his tissue started dying and they had to make a snap decision to do surgery or he would lose his leg. They did the surgery but his blood got too thick and he formed a few huge clots that they have been trying to drain. They had to put some steel plates to put his femur back together. Well this morning the doctor said they aren't out of the woods because they can't get his blood too thin or he'll bleed to death from his surgical wounds which he is still losing blood from, and yet it's still too thick and he is forming several clots which a small one could easily form and sneak through to his heart or lungs or brain and kill him. They don't know what to do with him at this point. It is soooo frustrating. So too thin and he bleeds and too thick he clots. Everytime in the past they have pulled him off his blood thinners he has clotted so bad he ended up in the ICU, so they are struggling to figure out what to do. They are even discussing amputating hisleg because his tissue is not doing well and that way they can cauterize the wound and stop the bleeding and get it to stay thin enough that he won't bleed out. I don't know. I'm going crazy here because I can't go up to Colorado because I am waiting for the date and time for my liver biopsy which is kind of freaking me out a little bit. But I Just worry about Todd. I love my Brother.
FINALLY a doctor, my OB looked at ALL my labs and ct scans I've had in the last year and she asked me if I knew my spleen and liver are enlarged!! No I said. These Docs kill me. She said she sees several things in my blood work, that she didn't even do, that scared her and is abnormal.
She said A LOT of areas show concern. I'm dumbfounded that it took my OB to finallly take a look at all my labs that are all right there on Presbyterian's computers. ALL my doctors I've seen, the specialists have access, and my GP who gets all my labs and results who i just saw a week ago for all these issues with my heart has all the info my OB went and printed off and i sat in her office while she flipped through the paper work and in 2 minutes she is shaking her head wondering why no one has checked my liver and spleen. Why no one has wondered why I've been severely nauseous for 6 months and been vomiting severely for a month and my blood pressure went throught the roof. She asked me what my GP has been saying about all of this and when i told her he asked me If I am seeing a psychiatrist she laughed and said i need a new Doctor. Really??? I've been trying like crazy to find someone to care and it's great she does but she is an OB and doesn't specialize in all of the stuff she is worried about she just sees a lot of crap in all of the collective news. Why is it becuase I told my GP I have Fibro he assumes everything is that? And it's in my head. Just really frustrated right now. Wishing I was a celebrity or had some serious money so I could get some attention to the crap that people deal with. So, not impressed with this situation. I just don't want anyone to go through what I've gone through and I know I'm not the only one for sure that has a chronic pain disorder and everything that happens after is automatically assumed to be a part of that. Just angry becuase we pay for insurance and they pay my doctor, they do get money to see me, is it really that hard to see an enlarged liver and spleen on a scan and say somehitng about it? Like maybe, you should check this out or anything. I just hope and pray my kids do not get sick while we live here. I might end up in jail.lol
So, I got my tests back that she sent me for and sure enough my liver work came back and each test shows that i'm 250pts over the normal range on everthing. Same with my Red Blood Cell count which is wierd. Normally women are anemic or low on blood and iron. Then several other things were off. She sounded very concerned and said we can't wait for you to get into an Internist by waiting for a new patient appt. and I'm going to call my contacts and find you and internist as as soon as possible because you need a liver biopsy done and i will get you in asap. So, that was last week and she calls me every day telling me she is trying very hard to get me seen. It's so hard because Internist's are only in their office a few days a week and then they are doing other procedures in Hospitals and clinics. So, I'm waiting and I'm not doing anymore internet searches on my test results and what it could mean. Freaked myself out. I know the Lord is smacking me over the head to learn patience. Maybe I'll get it down soon. So it seems my family needs a few prayers our way. Especially for Todd. No matter how old I get I will always think of my older sister and brother in a way they'll never understand. I love them both more than they'll ever know and i think of them more than they know. What ever may come in this life i know we'll never be given more than we can handle no matter what. I'm so greatful for that knowledge.